Walk raises money, awareness for deadly disease

Dozens wore purple and walked in Stony Brook Saturday to raise awareness for sarcoidosis. Sarcoidosis is an inflammatory disease that can affect nearly all organs of the body. Organizers say that it

News 12 Staff

Apr 26, 2015, 1:43 AM

Updated 3,283 days ago

Share:

Walk raises money, awareness for deadly disease
Dozens wore purple and walked in Stony Brook Saturday to raise awareness for sarcoidosis.
Sarcoidosis is an inflammatory disease that can affect nearly all organs of the body. Organizers say that it is often misdiagnosed due to patients rarely having the same symptoms.
"There is no cause and there is no cure for it," said Frank Rivera, of Sarcoidosis of Long Island. "That's one of the reasons why we are trying to raise awareness."
Rivera himself has sarcoidosis. He says that it was originally misdiagnosed as cancer in 2004, causing him to go through four years of chemo and radiation therapy. The struggle is what inspired the Coram resident to create Sarcoidosis of Long Island.
The walk helped raise money to help two girls, aged 11 and 15, battling sarcoidosis.
The Town of Brookhaven recently voted to make April Sarcoidosis Awareness Month.


More from News 12
0:24
Prosecutors: Bellport man pleads guilty to hit-and-run that seriously injured pedestrian

Prosecutors: Bellport man pleads guilty to hit-and-run that seriously injured pedestrian

1:45
Cool temperatures and cloudy skies on Long Island

Cool temperatures and cloudy skies on Long Island

1:11
Oldest Men’s Senior Baseball League player honors surgeon who saved his career

Oldest Men’s Senior Baseball League player honors surgeon who saved his career

1:17
Annual ‘Spring Dust Off’ car show to take place in Point Lookout

Annual ‘Spring Dust Off’ car show to take place in Point Lookout

1:56
Authorities: Nassau County police officer attacked by 2 men, pit bull in East Rockaway

Authorities: Nassau County police officer attacked by 2 men, pit bull in East Rockaway

0:36
Southampton police: Man arrested in Riverside machete attack that injured 24-year-old

Southampton police: Man arrested in Riverside machete attack that injured 24-year-old

1:10
Lawmakers in Albany pass $237 billion state budget, restore school funding

Lawmakers in Albany pass $237 billion state budget, restore school funding

0:28
Man who set himself on fire outside Trump trial dies of injuries, police say

Man who set himself on fire outside Trump trial dies of injuries, police say

Knicks beat 76ers 111-104 in Game 1 of playoffs. Brunson and Hart score 22 points and backups star

Knicks beat 76ers 111-104 in Game 1 of playoffs. Brunson and Hart score 22 points and backups star

Andersen, Noesen help Hurricanes push past Islanders 3-1 to open 1st-round NHL playoff series

Andersen, Noesen help Hurricanes push past Islanders 3-1 to open 1st-round NHL playoff series

0:42
'A Dream Prom Boutique' ensures Nassau high schoolers have prom of their dreams

'A Dream Prom Boutique' ensures Nassau high schoolers have prom of their dreams

0:43
Huntington’s Blue Line Deli & Bagels gives away free bagels to customers ahead of Islanders postseason

Huntington’s Blue Line Deli & Bagels gives away free bagels to customers ahead of Islanders postseason

0:18
Car crashes into back of oil truck in Long Beach

Car crashes into back of oil truck in Long Beach

0:19
Authorities: RV catches fire at park in Shirley

Authorities: RV catches fire at park in Shirley

0:28
Police: Levittown woman arrested for driving drunk with 2 children in vehicle

Police: Levittown woman arrested for driving drunk with 2 children in vehicle

1:13
CDC: Children ER visits increased last 3 years for accidental Melatonin ingestion

CDC: Children ER visits increased last 3 years for accidental Melatonin ingestion

2:05
Long Island native ID’d as person who set himself on fire outside Trump trial in Manhattan

Long Island native ID’d as person who set himself on fire outside Trump trial in Manhattan

0:37
Officials: Wildlife rehabilitator took raccoons into her Merrick home without required rabies license

Officials: Wildlife rehabilitator took raccoons into her Merrick home without required rabies license

1:42
FBI on alert as Jewish Long Islanders prepare to celebrate Passover

FBI on alert as Jewish Long Islanders prepare to celebrate Passover

0:35
Tesla recalling nearly 4,000 Cybertrucks because accelerator pedal can get stuck

Tesla recalling nearly 4,000 Cybertrucks because accelerator pedal can get stuck