Family spreads AVM awareness after loss of their 6-year-old daughter
Suffolk family is spreading awareness of a rare and undetected brain condition
that claimed the life of their 6-year-old daughter.
Jan. 8, 2018, Gina Keely says the school nurse called to tell her that her
daughter, Paige, was crying about a bad headache. By the time she arrived at
the school, Paige was having seizures and was unresponsive.
short hours after trying to bring her back, she did not survive,” Keely told
suffered from AVM, or arteriovenous malformation. Doctors describe it as a
tangle of abnormal blood vessels connecting arteries and veins to the brain,
which can rupture.
of Nissequogue, established a foundation in Paige's memory
. She is aiming
to raise awareness, promote medical screenings and is pushing for more training
for emergency responders. When it comes to AVM, she says every single second
was beautiful. She was perfect. I’d give anything in the world to have her
back,” says Keely.
“The most important subtle findings have to do with these crushing headaches, dizziness, loss of balance, nausea, vomiting,” said the doctor. “If those are persistent, I would definitely pursue further investigation.”
Screenings include an interview, physical exam and if needed an MRA, which is similar to an MRI.
is AVM Awareness Month.