Volleyball tournament to be held for Floral Park teacher's son who has Duchenne muscular dystrophy

A teacher at Floral Park Memorial High School is continuing to fight for his son, who has a rare genetic disorder.

Stephen Levine

Jul 8, 2022, 7:07 PM

Updated 747 days ago

Share:

A teacher at Floral Park Memorial High School is continuing to fight for his son, who has a rare genetic disorder.
Ethan Demmers was diagnosed with Duchenne muscular dystrophy in 2014. Ever since then, Dustin Demmers and the Floral Park community, have rallied for a cure.
The disease causes muscles to weaken, causing issues with mobility. There is no known cure.
A volleyball tournament to raise money in the battle against the disease was started eight years ago by Sarah Caulson, who was then a student at Floral Park Memorial, and her family.
"They wanted to do something for Ethan and help us with some of the burdens of caring for a child with DMD," Dustin Demmers says.
Over the years, Dustin Demmers says they've had more and more people creating teams for the tournament and playing to help support the cause. He says his family has become close with Caulson, who is now a teacher at Floral Park Memorial herself, and her family.
"It keeps getting better and better," Dustin Demmers says. "Since it has started, the tournaments have raised over $15,000."
Unfortunately, Dustin Demmers says his son, who is now 13, has progressed more visibly with his disease. He says he falls all the time, can't use stairs much anymore and is falling behind his peers socially because he can't do what they can.
Although Ethan Demmers' father says his son is still positive about his condition and won't admit much of his difficulties, it's taking a toll on himself and his family.
"But as a parent, watching my child lose more and more of his abilities results in a daily broken heart," Dustin Demmers says.
Dustin Demmers, who has been an English teacher at the Floral Park high school for years, says the support from his school's community is a testament to how students, their parents and business owners of the Long Island village are so evolved as human beings.
This year's volleyball tournament will be held Saturday on Laurelton Avenue in Long Beach. Registration begins at 9 a.m.


More from News 12
0:29
Police: Hempstead woman arrested for DWI with 3-year-old daughter inside vehicle

Police: Hempstead woman arrested for DWI with 3-year-old daughter inside vehicle

2:25
Mostly cloudy, muggy conditions with a possible stray shower on Long Island

Mostly cloudy, muggy conditions with a possible stray shower on Long Island

2:01
Police: Fire erupts at Elmont home, spreads to neighbor’s garage

Police: Fire erupts at Elmont home, spreads to neighbor’s garage

0:46
Officials kick off 10th annual Suffolk County Marathon

Officials kick off 10th annual Suffolk County Marathon

0:19
Officials: Huntington Station man sentenced to prison for fatally stabbing friend, trying to kill friend’s wife

Officials: Huntington Station man sentenced to prison for fatally stabbing friend, trying to kill friend’s wife

1:51
Enjoy family fun at Empire Adventure Park in Nassau County

Enjoy family fun at Empire Adventure Park in Nassau County

0:29
Southwest breaks 50-year tradition and will assign seats; profit falls at Southwest, American

Southwest breaks 50-year tradition and will assign seats; profit falls at Southwest, American

2:06
Best Beaches: Venetian Shores in Lindenhurst

Best Beaches: Venetian Shores in Lindenhurst

3:25
The East End: Someday Came Fishing Charters

The East End: Someday Came Fishing Charters

0:22
Police: 2 suspects wanted for attempting to use stolen credit card in Islandia

Police: 2 suspects wanted for attempting to use stolen credit card in Islandia

0:28
Prosecutors: Former Nassau County Fire Service Academy employee accused of defrauding workers compensation

Prosecutors: Former Nassau County Fire Service Academy employee accused of defrauding workers compensation

2:15
Another man pleads not guilty  in a Nassau County burglary ring that started last summer

Another man pleads not guilty in a Nassau County burglary ring that started last summer

2:00
Wyandanch residents demand answers nearly one year after investigation began into grade fixing allegations

Wyandanch residents demand answers nearly one year after investigation began into grade fixing allegations

0:41
Biden delivers solemn call to defend democracy as he lays out his reasons for quitting race

Biden delivers solemn call to defend democracy as he lays out his reasons for quitting race

0:15
Officials: Car fire in Hicksville spreads to home, no injuries reported

Officials: Car fire in Hicksville spreads to home, no injuries reported

2:13
Police: Fake company 'Top Line Masonry' scammed homeowners in Floral Park

Police: Fake company 'Top Line Masonry' scammed homeowners in Floral Park

0:15
Police: Teen struck by car while riding bike in Rockville Centre

Police: Teen struck by car while riding bike in Rockville Centre

1:16
Two LI natives go for gold at Summer Olympics

Two LI natives go for gold at Summer Olympics

1:56
Nassau Democrats block vote on borrowing until grant money released

Nassau Democrats block vote on borrowing until grant money released

1:43
Bay Shore Assembly of God school's sudden closure leaves parents scrambling

Bay Shore Assembly of God school's sudden closure leaves parents scrambling