West Babylon family's nonprofit helps others dealing with health issues

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The parents of a 7-year-old girl who was born with a congenital heart defect are using their journey to now help others.

Savannah Amore was diagnosed prenatally with her condition and had open heart surgery at six days old.

This is heart disease awareness month, and her parents are thankful for their little miracle.

"She's spunky, she's resilient," says Danielle Amore. "She is something else! She definitely keeps us on our toes that's for sure. But you know what I wouldn't have it any other way."

According to statistics, 1 in every 10 children are born with congenital heart disease. In Savannah's case, doctors diagnosed her with what's called Shone's complex.

"There was an abnormality in one of the valves that connects the top part of the left side of the heart to the bottom part of the left side of the heart and the biggest issue for her was that the major pipe -- the aorta -- which leaves the left side of the heart to deliver blood everywhere," says Dr. Tasneem Hogue, of NYU Winthrop Hospital. "That valve had a narrowing in it."

Danielle and her husband Matthew started a nonprofit to help other families in similar situations. They raise money to help with hospital bills, deliver care packages to children in the hospital and they even hold hands with parents who need support.

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