Run raises awareness of Trisomy 18, fatal disorder in newborns

Trisomy 18, also known as Edwards Syndrome, is

Trisomy 18, also known as Edwards Syndrome, is a rare chromosome disorder that most of the time proves fatal for newborns. It affects one in every 6,000 babies. (Credit: Guidone family)

WOODBURY - An event was held on Long Island today to raise awareness about a fatal disease that leaves some families with only moments to meet their newborns.

Trisomy 18, also known as Edwards Syndrome, is a rare chromosome disorder that most of the time proves fatal for newborns. It affects one in every 6,000 babies.

Dawn and Michael Guidone lost their daughter Catherine to the disorder five years ago. The baby was diagnosed before her birth, and the family continued the pregnancy knowing they wouldn't have much time with her.

To keep Catherine's memory alive and spread the word about the disorder, the Guidone family has started the Littlest Angel Foundation. They held a run and a fundraiser at Syosset-Woodbury Park today to raise awareness and money.

"I felt that I really needed to do something productive," says Dawn Guidone. "I wanted people to know this chromosome disorder exists, and there's not a stigma to losing a child, and there is a community out there that will help you get through it."

The event was a comfort to Regina Pizzonia, of Manorville. She gave birth to twins just 7 weeks ago, a baby boy named Joseph and a girl named Isabella. Isabella had Trisomy 18, and lived for just an hour.

Pizzonia says she wouldn't have missed today's fundraiser and she's glad to have the support from other families.

advertisement | advertise on News 12

Top 5 Must See

The county's Republican Executive Committee met to decide 1 Nassau GOP endorses Martins for exec
Thousands of mourners gathered in Bethpage for the 2 Thousands line Bethpage streets in tribute to fallen firefighter
Amtrak announced Thursday it will begin replacing tracks 3 Amtrak accelerating Penn Station work, rail delays expected
Some are concerned about what is being called 4 Loophole could allow sex offenders to work for Uber, Lyft
They blame the tax break for sending property 5 Hempstead IDA revokes Green Acres Mall tax break

advertisement | advertise on News 12

Features

Each week, News 12's Doug Geed explores the Check out fun things to do on the East End!

Explore the Twin Forks with News 12's Doug Geed.

Each week a different shelter visits News 12 Dog Day Fridays Series

Each week a different shelter visits News 12 Long Island with pets up for adoption.

News 12 digs deep to find Long Island's Discover Long Island's Hidden Past

News 12's Danielle Campbell digs into Long Island's roots.

News 12's Lily Stolzberg sees how much Long On The Spot

News 12's Lily Stolzberg sees how much Long Islanders know about everything and anything.

Sorry to interrupt...

Your first 5 are free

Access to News12 is free for Optimum, Comcast®, Time Warner® and Service Electric℠ video customers.

Please enjoy 5 complimentary views to articles, photos, and videos during the next 30 days.

LOGIN SUBSCRIBE