Robbie Twible, who suffers from epidermolysis bullosa, hopes to meet Ellen DeGeneres

An East Meadow boy suffering from a painful disorder says he hopes to meet talk show host Ellen DeGeneres. Robbie Twible says he is a

Robbie Twible has already met Justin Timberlake and

Robbie Twible has already met Justin Timberlake and the cast of "Jersey Boys." (Credit: News 12 Long Island)

EAST MEADOW - An East Meadow boy suffering from a painful disorder says he hopes to meet talk show host Ellen DeGeneres.

Robbie Twible, 12, has already met Justin Timberlake, Mets player David Wright and the cast of the Broadway show "Jersey Boys." He says he is a big fan of DeGeneres and tells News 12 Long Island that he wants to meet her because she likes to help people.

Twible suffers from epidermolysis bullosa, or EB. The disorder causes skin to be very fragile and Twible's mother, Kathy, says her son is often in excruciating pain. Kathy Twible, a Great Neck teacher, runs marathons to raise money for EB.

More on this topic

Boy Wants To Meet Ellen

Jackson Gabriel Silver Foundation

advertisement | advertise on News 12

Top 5 Must See

Sources say two people were killed and one 1 2 dead, 1 injured in Gabreski Airport small plane crash
Authorities say a Syosset man was killed and 2 LI man dies when car plunges into CT river
Actor Bill Paxton was beloved for his roles 3 Actor Bill Paxton dies at age 61
Gov. Andrew Cuomo was on Long Island Sunday 4 Cuomo unveils $130M project to reconstruct Nassau Expressway
Police say Areefeen Hirji, of Muttontown, was in 5 Teen arrested in connection to deadly Woodbury crash

advertisement | advertise on News 12

Features

Each week, News 12's Doug Geed explores the Check out fun things to do on the East End!

Explore the Twin Forks with News 12's Doug Geed.

Each week a different shelter visits News 12 Dog Day Fridays Series

Each week a different shelter visits News 12 Long Island with pets up for adoption.

News 12 digs deep to find Long Island's Discover Long Island's Hidden Past

News 12's Danielle Campbell digs into Long Island's roots.

News 12's Lily Stolzberg sees how much Long On The Spot

News 12's Lily Stolzberg sees how much Long Islanders know about everything and anything.

Sorry to interrupt...

Your first 5 are free

Access to News12 is free for Optimum, Comcast®, Time Warner® and Service Electric℠ video customers.

Please enjoy 5 complimentary views to articles, photos, and videos during the next 30 days.

LOGIN SUBSCRIBE