Robbie Twible, who suffers from epidermolysis bullosa, hopes to meet Ellen DeGeneres

An East Meadow boy suffering from a painful disorder says he hopes to meet talk show host Ellen DeGeneres. Robbie Twible says he is a

Robbie Twible has already met Justin Timberlake and

Robbie Twible has already met Justin Timberlake and the cast of "Jersey Boys." (Credit: News 12 Long Island)

EAST MEADOW - An East Meadow boy suffering from a painful disorder says he hopes to meet talk show host Ellen DeGeneres.

Robbie Twible, 12, has already met Justin Timberlake, Mets player David Wright and the cast of the Broadway show "Jersey Boys." He says he is a big fan of DeGeneres and tells News 12 Long Island that he wants to meet her because she likes to help people.

Twible suffers from epidermolysis bullosa, or EB. The disorder causes skin to be very fragile and Twible's mother, Kathy, says her son is often in excruciating pain. Kathy Twible, a Great Neck teacher, runs marathons to raise money for EB.

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